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Eugen Boltshauser, MD
Department of Neurology
Children's Hospital
Steinwiesstrasse 75
CH-8032 Zurich, Switzerland
office: 0041-44-266-7330 (7111)
fax: 0041-44-266-7163
email: eugen.boltshauser@kispi.unizh.ch
Call with questions if you are outside the
USA
 
Mary Ann Trott, MA
1621 Richmond, NE
Albuquerque, NM 87106
work: (505) 298-6752 ext 3427
home: (505) 266-2632  Prefers calls at home
email: wmtrott@comcast.net or trott@aps.edu
Call with questions regarding special education & sensory processing and how it effects learning and behavior
Melissa Parisi, M.D., Ph.D.
Department of Pediatrics

Health
Sciences Center, Box 356320
University of Washington School of Medicine

1959 NE Pacific St
.
Seattle, WA 98195
office: (206) 987-2689   fax: (206) 987-2495
email: mparisi@u.washington.edu

Call with questions regarding gene research

Bernard L. Maria, MD/MBA
Jeffrey Edwin Gilliam Chair and
Professor of Pediatrics and Neurosciences
Executive Director of the Charles P. Darby Children's Research Institute

Medical University of South Carolina
173 Ashley Avenue Room 409
P.O. Box 250514
Charleston, SC 29425
office: (
843) 792-7715
email: mariabl@musc.edu

Call with questions regarding research & clinical manifestations
 

Latif Hamed, MD, FACS
Florida Eye Specialist Institute
3230 SW 33rd Road

Ocala, FL 34474
office: (352) 237-0090 fax: (352) 237-0052
Call with questions regarding the eyes


Sandra McNiff, M.S. Sp., CCC/SLP
email: mcniffsandra@hotmail.com
Send email with questions about AAC intervention.  Reference AAC or Joubert

Diane Lewis, MA, CCC/SLP
Children's Innovative Therapy Group, LLC
5109 Battery Lane

Bethesda, MD, 20814
office: (301) 652-2220      (301) 652-9555 (fax) 
email: dianelewisces@aol.com 
Call with questions regarding speech-language pathology
 
Natalie Zozzaro, MS PT
115 10th Avenue
Seaside Park, NJ 08752
office:
732-905-7200
email: natalie.zozzaro@ladacin.org
Call with questions regarding physical therapy
Grant T. Liu, MD
Professor of Neurology and Ophthalmology
Division of Neuro-ophthalmology
Department of Neurology
University of Pennsylvania Medical Center
3 West Gates Bldg., 3400 Spruce Street
Philadelphia, PA 19104-4283
office : (215) 349-8460  fax: (215) 349-5579
www.upno.org
Dr. Liu also sees patients at CHOP
office (215) 590-2791
www.chop.edu
 

 

information updated 3-2008

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