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Winter 2006 January,
February, March
Happy New Year!!!!
The start of the New Year brings much anticipation for
the next conference. I have included once again a form
for any interested families wanting a conference packet.
Please fill this out and send it back to me ASAP.
Conference packets are sent only to families requesting
them. Current conference information is posted on our
website.
Some of the exciting conference highlights include:
Key note speaker Ben Keckler-focusing on Emotional
Health for Joubert Families.
Mary Ann Trott-presenting on Sensory Processing.
Carol Tashie- presenting on "Voices of Friendship: How
Schools Help or Hinder the Development of Social
Relationships". It is generally agreed that friendships
are the spice of life. Furthermore, friendship and a
sense of belonging are essential elements in student
achievement and successful outcomes. However, many
students with disabilities report they are lonely and
lack real meaningful relationships with classmates and
friends. This workshop will help participants learn to
identify the barriers to friendship that exist in many
schools and classes as well as strategies that you can
use to support meaningful relationships for the students
you know and love.
Karen Tompkins BRAINJUICE: How the chemistry of your
brain affects your behavior. Participate in Karen's
active discussion about how specific aspects of your
neurochemistry cause you and your child to feel
angry/anxious.... and how to feel better through
activity.
Alison Rickerl-"Visual Impairments in a Nutshell".
The scientific portion of our conference this year is
geared to all of YOU. We have designed it in a way that
allows you to pick the specialists you'd like to meet
based on your families needs. You will have private,
one-on-one time with them to discuss YOUR child, get
their expert advise, or ask your specific questions. I
encourage you to think ahead and have your questions
ready to ensure that you benefit from this opportunity.
For those specialists who receive many requests for
consultations, appointments will be scheduled on a first
come, first served basis.
Included in this issue are the Sponsorship Forms and Ad
Forms (previously included with the Summer issue).
Please share these forms with family and friends, and
employers, to see what help you can find to keep our
conference costs down. If you need additional copies of
the conference forms, please print them from our website
www.joubertsyndrome.org.
If anyone has any questions regarding the conference,
please don't hesitate to contact me. When planning the
conferences, I do my best to take into consideration all
previous evaluations, comments and special requests.
Please note your special request on your registration
form or send me an email. I will see what I can do.
Previously each January, several Board of Director terms
have come up for renewal. At our last Board of Directors
meeting, a decision was made to coincide terms with our
Biennial Conferences. We will have a new process of
electing the Officers and Board of Directors who will
help run our Foundation. This will take place at the
Biennial Conference in July during our General
Membership Meeting. As our membership grows, so to does
our Board! We are looking to expand our Board to include
family members, and individuals who don't necessarily
have a direct involvement with a child with JS. If you
or anyone you know is interested, and are willing to
commit to a 4 year term, please send a resume and cover
letter to our Secretary, Karen Tompkins, by March 31,
2006. Nominations will be posted in the Spring 2006
newsletter. Voting of paid members will take place by
ballot at the Conference. If you will not be attending
the conference, and you are a paid member, you may
submit your vote prior to the Conference. A ballot will
be available in our next newsletter and on our website.
Ballots will be sent back to the Secretary by mail or
email. All votes will be tallied at the General Meeting.
Newly elected Board members will be announced in the
Summer newsletter.
We welcome and encourage your participation to work on
short or long term projects with any of our committees.
Please contact any of our Board members via email or
phone to offer your support in helping us make a
difference!
I believe that is all of my report for this quarter. If
you ever have any questions, comments, or would like to
join any committee, please feel free to contact me at
any time!!
Your friend and President,
Cheryl
Duquette
If you have any questions, please feel free to contact
Cheryl via email or by phone 410-997-8084.
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The views expressed do
not necessarily reflect those of the donors. The articles,
announcements, and resources included on this website are
for information only and should not be considered as medical
advice. Please always consult your physician for medical
advice. The Joubert Syndrome Foundation & Related Cerebellar
Disorders does not endorse any product, service, or theory
referred to on the website.
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