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Spring 2005 April, May, June
Happy Spring!!!
Wow! This year continues to fly by quickly. I can't
believe it is almost summer.
I'm pleased to announce the Joubert Syndrome Foundation
& Related Cerebellar Disorders Board for 2005. The Board
voted to expanded from 7 to 9 members. The Officers and
Board members are as follows:
President and Board Member - Cheryl Duquette
Vice-President and Board Member - Michele Abdulaziz
Treasurer and Board Member - Janet Gundling
Secretary - Karen Tompkins
Board Member - Era Hall
Board Member - Luise Reading
Board Member - Eric Rosenthal
Board Member - Rich Duquette
Board Member - Nadine Phillips
Board Member - Amanda Tulumalo
We were sorry to see Bonnie Tolles leave our Board.
Thankfully, however, Bonnie continues to play an
active role for our Foundation, serving on our Bio-Bank
committee. A HUGE congratulations to Bonnie and her
family?Bonnie is expecting a baby this summer!
We welcome 3 new additions to our Board: Rich Duquette,
Nadine Phillips, and Amanda Tulumalo. We are very
excited about their enthusiasm and dedication to the
Foundation.
As many of you know by now... The 2006 conference
information is on our web site. If you have not seen it
posted on the website, the information is included in
this issue of The Rainbow (see pages 3 & 11)). Our
conference will be in Irving, Texas July 6 - 10, 2006.
Irving is located right outside Dallas and Fort Worth.
Our conferences continue to get better and better! As
you read through the information, keep in mind that we
are still in the planning stages so the schedule is
tentative. Also, I will have the hotel information soon
so you can start making your travel arrangements. It is
NEVER too early to start planning!
Some things you can start doing now include: getting
donations for our closing gala event's silent auction
getting companies to sponsor portions of the conference
(to help keep our registration fees down); and, hosting
your own fundraising event to cover your costs. The
Foundation is also hopeful to provide small grants to
help families attend the conference.
Grandparents, aunts and uncles, and friends are welcome
to come. The more the merrier! If anyone is interested
in volunteering their time to help out with this
conference, please let us know. This is always
appreciated as it takes a lot of hands to make this
event a huge success.
Please watch out for conference updates to be posted on
our website, and printed in subsequent newsletters.
Updates will be provided as more plans are finalized.
Bye for now and enjoy the Spring time weather!!
Your friend and president,
Cheryl Duquette
If you have any questions, please feel free to contact
Cheryl via email or by phone 410-997-8084.
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The views expressed do
not necessarily reflect those of the donors. The articles,
announcements, and resources included on this website are
for information only and should not be considered as medical
advice. Please always consult your physician for medical
advice. The Joubert Syndrome Foundation & Related Cerebellar
Disorders does not endorse any product, service, or theory
referred to on the website.
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