Fall 2006 October, November, December
Hi Everyone,
Fall is here and before we know it the holidays will
be upon us!
Fall is the time of year when I
travel to the Child Neurology Society (CNS) meeting
and the American Society of Human Genetics (ASHG)
meeting. This year CNS was in Pittsburgh, PA and
ASHG was in New Orleans, LA. As always, both
meetings were very productive—meeting new scientists
and continuing to spread the word about Joubert
Syndrome and Related Cerebellar Disorders. This
year, the board worked on building our library of
information to include the related conditions
associated with Joubert Syndrome. This information
was made available to the attendees at the CNS and
ASHG meetings. I was very pleased to make some
connections with physicians from the National
Institutes of Health (NIH) this year. We are hoping
to partner with them in the future for research. I
hope to have more news on that in a future issue of
“The Rainbow”.
Our Foundation has members from all
around the world. We would like to be able to
provide information on Joubert Syndrome in other
languages. I am looking for help from any member, or
friends of members, who have the ability to
translate information into foreign languages. It
would be wonderful to be able to reach out to more
families who speak other languages. If you know
anyone willing to help us, please contact me!
My letter to you this issue is short
and sweet! I would like to wish everyone a healthy
and happy holiday season!
Your friend and President,
Cheryl
Duquette
If you have any questions, please feel free to contact
Cheryl via email or by phone 410-997-8084.
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