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The Joubert Syndrome Foundation &
Related Cerebellar Disorders offers a quarterly
newsletter filled with exciting news and great
information.
Here is what is in the Winter 2008 Volume 17, Issue 1
Newsletter:
President's Letter ...
page 1
JSF Regional Coordinators
& State Contacts ... page 2
2008 Membership Letter ... page 3
2007 Donations ... page 4
Family Updates ... pages 5 & 6
New Year's Resolutions for Caregivers ...
page 6
Update on the genetics of Joubert
syndrome and genetic testing options ... pages 7 & 8
Genetic Testing and Joubert Syndrome ...
page 8 - 10
Recommendations for Eval and Monitoring ... page 11
JSF & RCD BioBank ... page
12
Setting Smarter Goals ... page 13
How You Can
Help ... page 14
JSF Publications, Videos, Merchandise ...
insert
2008 Membership
Application ... insert
Professional Advisors back cover
If you would like to read more about these and other
interesting topics in our Foundation's quarterly
newsletter, please join our membership. Fees are $35.00
for US residents, and $40 for international residents
(paid in US currency). Your membership fee also
entitles you to other JSF&RCD mailings.
Please send your check to:
Joubert Syndrome Foundation & Related Cerebellar
Disorders
c/o Janet Gundling
8 Ash Road
Jackson NJ 08527
When making your payment,
please indicate you are joining our membership.
Please include the following information along
with your payment: your
name, address, phone, fax, email address,
effected child(ren) name(s)
and birth date(s).
If you would like to submit a "Getting to
Know You", "Family Update", article or
anything you would like to share with others for
The Rainbow, newsletter,
please
send an email to
Janet Gundling.
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