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Feeding / Oral - Motor
Dianne Lewis, MA, CCC/SLP, Bethesda, MD
Joubert Syndrome Foundation & Related Cerebellar
Disorders Professional Advisory Committee Member
Feeding and oral motor skills are always negatively
impacted upon in the child with Joubert Syndrome since
all of these children have atypical sensi-motor
processing throughout the face and mouth. The primary
symptom is hypotonia or floppy muscles. Frequently the
child with Joubert Syndrome has delayed feeding skills
and drooling. Some of these children are hypersensitive
to touch, be it food, the spoon, or the cup.
Oral - Motor and Feeding Skills
Gus Olson, MS, OTR, Escanaba, MI
Joubert Syndrome Foundation & Related Cerebellar
Disorders Professional Advisory Committee Member
Most children with Joubert Syndrome have feeding delays
and may have difficulties with sucking and swallowing
due to low tone in the face. Therapists have had some
success with the use of a vibrator to the facial muscles
to increase muscle tone especially prior to feedings or
meals. Caution needs to be observed and the parents
should consult an occupational therapist or speech
therapist as many of the children are hypersensitive to
touch. If frequent hand-to-mouth behaviors are observed,
oral stimulation should be incorporated into the sensory
diet.
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